SITES FOR SORE EYES . . .

 

In this day and age of the information superhighway and mass-ive media, there is no shortage of resources in which one can find whatever they seek. It can also be extremely overwhelming: Where do I begin? What exactly AM I looking for? How do I know if it’s right for me or even applies to my particular situation? How do I tell if it’s a scam or if the information is legit? And then, what am I to do with all of this information?

 The bad news is, I don’t have the answers. The GOOD news is that I found some really wonderful sites/resources that were incredible guideposts along my path. As the Buddhist saying goes: the journey of 1,000 miles begins with one step (beautiful, eh?).

I’m sure there are many many others, but these are the sites I found helpful and I share these with you with one HUGE caveat: these are guides, not definitive answers. I strongly advise that you have a doctor, a physician, a qualified healer with whom you can consult on all of these choices and options. These are not intended for nor do I advocate/endorse self-diagnosis, self-treatment, and/or unsupervised methods of healing. Whatever healing choices you make (Western, Eastern, other), make them fully-informed, and that means that most often, the answers may come with more questions. Having the right person to whom you can present the information and questions is vital.

Gather your team of healers and work together to make a plan. Ultimately, it’s most important to tune in to yourself and find what resonates with you so that whatever decisions and choices you make come from a place of peace, calm, and clarity.

 

* * * * * * * *

SUPPORT:

These are sources of inspiration, support, and community . . .

 

GILDA'S CLUB

I can’t say enough about this community/organization – I’m their biggest fan, “unofficial” spokesperson, huge supporter of everything they do and stand for on every level! They are truly the most comprehensive cancer support organization, with an understanding that cancer affects the person on that journey, as well as friends, family, supporters, all of whom might need support and comfort. It’s for men, women, and children with all types of cancer, and their loved ones – and it’s not just groups of people talking about cancer. They have programs and events just for fun and specifically to NOT talk about cancer, dig? AND . . . it’s all FREE (they figure if you’re going through cancer, you’ve already paid your dues). There are at least 15 clubs nationally. Check ’em out!

 

OVATIONS FOR THE CURE

An incredible organization supporting the research, patient treatment, and awareness of ovarian cancer. They support this by proliferating broad-spectrum awareness of the risk factors and subtle warning signs of ovarian cancer, and through the continued support of new and ongoing ovarian cancer research and treatment initiatives.

 

S.H.A.R.E.

Support group/organization for women living with breast & ovarian cancer

 

SHOP WELL WITH YOU

A groovy non-profit organization that helps women with a history of cancer improve their quality of life by using clothing as a creative means towards wellness; S.W.Y. supplements traditional methods of healing by acknowledging that a woman's body-image, or how she feels about her own body, affects her overall well-being.

 

CANCER101

CANCER101's mission is to help patients and caregivers get organized and informed to fight their cancer. Although the incredible, inspiring, radiant found, Monica Knoll, recently crossed over, Cancer101 carries on in her Light and Vision. We provide CANCER101 Planners to cancer centers in all 50 states to give to their patients and caregivers in need. Our planners are free to their patients and include essential organizational tools and important resources designed to empower patients and caregivers to take control over their diagnosis from the moment they learn they have cancer through the next ten years of follow-up care. Our planners encourage patients to partner with their medical team: questions are asked and answered, notes and appointments are written down in one place, and patients and caregivers feel in control. And just as importantly, the planner gives patients and their loved ones hope.


CRAZY, SEXY CANCER

As you may have read seen from the book or the TLC documentary (or the fabulous DVD with extra bits 'n bytes), this is from an incredibly inspiring and empowering young woman named Kris Carr. An awesome and informative resource for anyone experiencing cancer, their families, loved ones, and anyone who wants to get a fresh and positive perspective on cancer and living a healthy life in general.
 

CANCER AND CAREERS

A resource for working women living with cancer

 

PLANET CANCER

Youth-oriented, really amazing coalition for raising awareness, funds, events, community, support

 

COMEDY CURES!

Through private and corporate donations, and the goodwill and humor of the comedy industry, the mission of ComedyCures is to entertain and educate kids and grown-ups living with a health challenge, as well as their families and medical caregivers about the benefits of laughter and a comic perspective on the mind, body, and spirit. Through their innovative, joy-filled programs, and live-events, ComedyCures provides people living with a health challenge the opportunity to integrate joy and laughter into each day.

 

YOUNG SURVIVAL COALITION

International, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the Y.S.C. seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The Y.S.C. also serves as a point of contact for young women living with breast cancer.

 

CHEMO ANGELS

I was blessed to have ’em in my family/friends, but for those who are on their own or whose family are perhaps too far away, or if you simply need extra support for whatever reason.

 

CARALWORKS GREETING CARDS

Providing women and children experiencing baldness from chemotherapy and their support network with greeting cards boasting hopeful, humorous, empowering and life-affirming images. Debra Zak, the founder of this incredible company, is an inspirational, amazing, kind, loving, incredible woman, and I love her! Hi Deb!

 

MUSICIANS ON CALL

Musicians DO make hospital calls; one-on-one concert just for you! NY/Philly-based – but ask your hospital about similar programs locally. I had a guitarist come and play for me in my room in South Florida, so . . . ask your hospital social worker about it.

 

BALD BUDDIES

The cutest lil’ dolls to bring a smile to your heart and soul

 

FUCK CANCER TEES

Fuck Cancer Tee-shirts; cool design, cute sense of humor, and why not? heehee

 

BALD GIRLS DO LUNCH

Not cancer-related, but can provide fun and new ways to consider embracing your hair loss.

 

ANOKHI

Beautiful scarves/textiles. Should you decide to wear this accessory, they have a wide range of gorgeous designs to choose from. They lovingly donated some scarves to a friend of mine with a brain tumor, and she loved them all! Thanks!

 

HEADBLADE

A fun and unique way to shave your head, should you need to do so.

 

Alopecia and Love

A wonderful and very comprehensive site about alopecia, and, for all of us, empowerment, embracing ourselves, defining our beauty and femininity for ourselves on our own terms (sound familiar?), and raising consciousness in the world!

 


PERSONAL STORIES

Barbara Carr Phillips

An inspiring story by cancer survivor Barbara Carr Phillips

Sheila's story . . .

Another personal story of a woman’s personal journey

 

 

BRAINFOOD / KNOWLEDGE IS POWER:

Places to get information about your health situation, perhaps get a “tanglible” understanding of what is physically happening in your body (if you are interested in that, which I encourage – knowledge is power), and help you to be able ask informed questions to your doctor(s) . . .

 

AMERICAN CANCER SOCIETY

They can help you find local resources, general info, and they do amazing awareness and fundraising to help find cures for all cancers

 

WEBMD

Medical resource site; ask, ask, ask

 

HEALTH MBA

Medical resource site; ask, ask, ask

 

MY DNA

New developments, technologies, clinical trials, etc

 

NATIONAL CANCER INSTITUTE

Nat'l Cancer Institute site, the 3rd menu item along the top bar is "clinical trials" where she can select her type of cancer and put in her zip code or whatever and see what's out there

 

MEMORIAL-SLOAN KETTERING

Sloan Kettering -- another top cancer center

 

NATIONAL INSTITUTE OF HEALTH

Nat’l Institute of Health

 

NATIONAL CENTER FOR COMPLEMENTARY & ALTERNATIVE MEDICINE

Nat’l Institute of Health’s Center for Complementary & Alternative Medicine

 

CLINICAL TRIALS

Found this one by accident ... give it a look-see

 

PEOPLE LIVING WITH CANCER

People Living with Cancer (w/Amer Society of Clinical Oncology) – oncology-approved patient information, resources, etc

 

CANCER FORUMS

A website for discussions about any type of cancer, including lung cancer, breast cancer, mesothelioma, prostate cancer, laryngeal cancer, leukemia, lymphoma, multiple myeloma and others

 

OVARY-SPECIFIC . . . (just a few)

 

OVARIAN CANCER RESEARCH FUND

OVATIONS FOR THE CURE

 

NATIONAL OVARIAN CANCER COALITION

 

OVARIAN CANCER COALITION

 

JOHNS HOPKINS UNIV.

Johns Hopkins Univ; top docs there; I had my original pathology read by one of their pathologists at the suggestion of my surgeon

 

WEB MD - OVARIAN CANCER CLINICAL TRIALS

Found this one by accident; typed in "ovarian cancer trials" and voila!

 

 

MONEY HONEY:

It can’t buy me love, but maybe can contribute to finding a cure, organizations that give a smile, inspire confidence, “soul” food for all those on the journey. Of course there are many, many, MANY more organizations, and this is a handful of my personal faves . . .

 

 

BALD IS BEAUTIFUL GEAR 'N GOODIES

This is a new thing for me . . . I started an online Bald Is Beautiful store. The items The items available for purchase here support the Bald Is Beautiful organization, bringing inspiration, encouragement, empowerment, healing, Light, and Love to so many people who deserve a HUGE societal hug. From tees to teddy bears to tote bags, share a hug and a smile by sharing the Bald Is Beautiful message with the ones you love! We're open 24/7, every day, all day, holidays & weekends!

 

 

GILDA'S CLUB

I can’t say enough about this community/organization (but you can read what I already said about them in the "Support" section above!) heehee

 

AMERICAN CANCER SOCIETY

 

REVLON RUN/WALK FOR WOMEN

My personal favorite fundraising walk-a-thon! New York & L.A. events every Spring!

 

BIG BAM

An amazing breast cancer awareness movement/organization

 

PRESENTS FOR PURPOSE

Buy all kinds of goodies to raise $$dough for a variety of charities of your choice

 

SHOP WELL WITH YOU

See description in the "Support" section above.

 

HERA OVARIAN CANCER CLIMB FOR LIFE  

HERA Ovarian Cancer Climb for Life

 

MUSICIANS ON CALL

See description in the "Support" section above.

 

METROFLY

Very cool organization that creates events to promote awareness of and raises funds for select New York City Charities. Utilizing a variety of creative means that empower both charity and community, Metrofly's vision is to create events that nurture community spirit, benefit philanthropic and humanistic causes, and bring people together for the betterment of all.

 

 

 

* Sites for Sore Eyes * The Kitchen Sink ("Alternative" Alternatives) * Library *


* Food for Thought (Words of Wisdom) * Can I Quote You on That? * Pictures Paint 1,000 Words *

 

* Music, Music, Music!! *



We are currently in the process of constructing our website, so please

forgive the kinks!


In the meantime, if you would like to contact Sharon directly,
please email her at sharon@baldisbeautiful.org.

 

 

2003 sharon blynn / baldisbeautiful.org